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Rheumatoid Arthritis (aged 16 and over only)

N040.% Rheumatoid arthritis
N041. Felty's syndrome
N042.% Other rheumatoid arthropathy with visceral or systemic involvement (Excluding N0420 Rheumatic carditis (v27))
N047. Seropositive errosive rheumatoid arthritis
N04X. Seropositive rheumatoid arthritis, unspecified
N04y0 Rheumatoid lung
N04y2 Adult-onset Still's disease
Nyu11 [X]Other seropositive rheumatoid arthritis
Nyu12 [X]Other specified rheumatoid arthritis
Nyu1G [X]Seropositive rheumatoid arthritis, unspecified
Nyu10 [X]Rheumatoid arthritis with involvement of other organs or systems
G5yA. Rheumatoid carditis
G5y8. Rheumatoid myocarditis


Rheumatoid Arthritis exception reporting codes ( Added in the previous 12 months)

9hR.. Exception reporting: rheumatoid arthritis quality indicators
9hR0. Excepted from rheumatoid arthritis quality indicators: patient unsuitable
9hR1. Excepted from rheumatoid arthritis quality indicators: informed dissent


RA – rationale for inclusion of indicator set

Rheumatoid arthritis (RA) is a chronic, disabling auto-immune disease characterised by inflammation in the peripheral joints, which causes swelling, stiffness, pain and progressive joint destruction. For a small proportion of people with RA, inflammatory disease outside the joints (for example, eye and lung disease, vasculitis) can pose a significant problem. RA affects around one per cent of the population; of these people, approximately 15 per cent have severe RA.

Although the confirmation of diagnosis and initiation of treatment may take place in secondary care, primary care has an important role to play in the management of RA. This may include checking cardiovascular risk and blood pressure, checking the person's risk for osteoporosis and assessing for signs of low mood or depression. An annual face-to-face review in primary care is an opportunity to assess the effect of the disease upon the person’s life, for example side effects to medication and whether they would benefit from any referrals to the multi-disciplinary team.

RA001.1 Rationale

The RA register includes patients aged 16 or over with established and recent-onset disease and in whom there is a definite diagnosis of RA, irrespective of evidence of positive serology and current disease activity status.

The register is restricted to patients aged 16 or over, to conform to international standards for differentiating RA from juvenile idiopathic arthritis.

The register also includes patients with inactive RA. There are three potential groups of patients whose disease may be referred to as inactive:

• patients who are being treated and whose disease is in remission

• patients who are not receiving treatment for RA but have evidence of past disease, for example, joint deformities. This type of RA is sometimes known as ‘burnt out’ RA. These patients are on the register as they remain at risk of the systemic effects of RA

• patients who are not receiving treatment for RA who have no evidence of past disease but there is doubt about their diagnosis. The contractor may wish to request erythrocyte sedimentation rate (ESR) or plasma viscosity, C-reactive protein (CRP), rheumatoid factor and hand X-ray to determine the accuracy of the diagnosis. Inaccurate diagnoses can be removed from the patient’s patient record which would also remove them from the register.

Recognition of synovitis in primary care and prompt referral for specialist advice is key to the early identification and treatment of RA. Synovitis is inflammation of the membrane that lines the inside of synovial joints (most of the joints in the body). Symptoms of inflammation include pain, swelling, heat and loss of function of an affected joint.

Identifying recent-onset RA can be challenging in primary care because of the variety of ways in which synovitis can present itself and the small number of patients who have RA compared with the number of patients with musculoskeletal symptoms. The NICE clinical guideline on RA recommends that patients with persistent synovitis are referred for specialist opinion. Urgent referral is needed when any of the following are present:

• the small joints of the hands or feet are affected

• more than one joint is affected

• there has been a delay of three months or longer between the onset of symptoms and seeking medical advice.

Early identification of recent-onset RA is important because long-term outcomes are improved if disease modifying anti-rheumatic drugs (DMARDs) treatment is started within three months of the onset of symptoms.


RA001.2 Reporting and verification

See indicator wording for requirement criteria.

Verification - NHS England may wish to discuss with contractors the process they use to identify patients with RA, and the number of patients with inactive disease whose diagnoses have been reviewed and the outcomes of this review.


Prepared By Jean Keenan